SSI APPEAL


Good afternoon,
I’m sorry to hear about what you and your family are going through. SSI is a federal matter and it is outside of the Senator’s jurisdiction as she is not a sitting member of the U.S Senate. Our office would have to refer you to your federal Representative. Based on the zip code provided, your representative may be Congressman Jim Costa: Congressman Jim Costa | Representing the 16th District of California (house.gov) or Congressman David Valadao: U.S. Congressman David G. Valadao (house.gov)
Sincerely,
Office of State Senator Hurtado
Constituent Services

My son is 2yrs old. He was diagnosed with an extreme rare disease WILLIAMS SYNDROME He received SSI until June 2021 In Jan 2021 SSI had us reverify. In Feb I got notice nothing would change. February they lowered his payments saying he was receiving calwin . This was not true. It took time to get the evidence SSI . DHHS provided me with evidence via official dhhs papers. I emailed the SSI worker frustrated. I feel that email was taken personal I stated I felt they need to GET IT TOGETHER . After that I got notice they had again reevaluated his case. I got notice in March they were stopping payment he no longer qualified. The decision was based on medical records they had received from the pandemic time. My son's conditions associated with Williams Syndrome are off the more severe He had open heart surgery, with more expected throughout his life. He WILL ALWAYS HAVE pulmonary hypertension, failure to thrive, gastrointestinal issues as well as pulmonary and cardiovascular for life. These are facts. I filed a hand written request as and a official appeal and sent both via mail. The original was received and returned by SSI with official paper I filed and sent . SSI records never showed it received. Running out of time for a appeal I used a priority USPS with requested signature upon delivery. . His last payment was received in July. The trackable letter shows online at USPS as not being updated as of Aug 11th. I filled a claim with USPS who's investigating whereabouts of parcel. I'm past appeal deadline.I have never gotten through to local office via phone only after 10- 30 minutes it disconnects. The reports the decision was based on were from during pandemic lock downs. I have recent reports from visits including pulmonologist, cardiovascular pulmonologist, dieticians, physical, speech therapist, all that have seen him since the decision.I am my son's only advocate I deserve the opportunity to be heard by a board, or judge, that could overturn this.
